Access Patient-Driven Data

The Preeclampsia Registry is a valuable resource to turn to when posing new questions, testing new hypotheses, and building study cohorts. The Registry's highly motivated participants self-report an extensive health, pregnancy, and family history, while also providing longitudinal data with yearly health updates. Some participants have even provided medical records and DNA samples, from which whole exome sequencing can be made available. Participants may also be approached to respond to new questions when needed.

The information collected is aligned with standards and definitions used in most current research efforts, making the data "user-friendly" to the greatest number of researchers.

Once approved, you will be able to access and analyze de-identified data, search for a study cohort, or use our study recruitment services. The trust patients place in us is uncompromised, therefore, research studies must be IRB-approved and evaluated by our internal review board to ensure patient safety and relevance to our mission.

Making Research Accessible to Patients

The Research Roundup team consists of diverse researchers who scour the peer-reviewed journals each quarter to highlight the most important, cutting-edge studies in the field of preeclampsia. The results of these studies are then summarized in plain language for our patient audiences and distributed via our quarterly research edition of the Expectations newsletter. We cover basic, molecular, clinical and population sciences, and a wide range of topics such as new findings in preeclampsia diagnoses, treatment, prevention, long-term effects, risk factors and etiology of preeclampsia.